An Open Letter to Save
Who Am I?
I am Chuck and I need a kidney to live. I am a veteran who served as a combat correspondent/photographer with the 1st Aviation Brigade in Vietnam. Upon returning I worked in
healthcare in a variety of roles with hospitals, insurers, and physician organizations to assure all Americans could access quality cost-effective healthcare.
How I Help Others
As a volunteer I give inspirational talks to raise much-needed research funds for the Dana-Farber Cancer Institute.
What Happened To Me?
My kidneys are failing due to medical treatment made necessary from exposure to Agent Orange in Vietnam.
How A Transplant Will Affect My Life
A kidney transplant will restore my health and will allow me to live freely and not have to be tied to a machine to stay alive. A kidney transplant will enable me to live a long healthy life with my family and to continue the fund-raising work I do for others.
More Information on Me
Watch Chuck's interview on WEEI during the Jimmy Fund Fundraiser https://vimeo.com/490029874
Read an article about Chuck in the Newton-Tab newspaper
Persons interested in speaking with a living person about donating on my behalf can reach out via https://www.nkdo.org/considering-kidney-donation.
Kidney Donation Basics
A kidney transplant will restore my health and will allow me to live a normal life again. A kidney transplant will enable me to live a long healthy life and continue helping others.
Most people have two healthy kidneys but can live a normal active life with only one. For that reason, kidney transplants have become routine in saving lives of people with kidney disease. Kidney donors typically spend two days in the hospital and soon resume normal activities.
About Kidney Donation
You do not need to be a match in order to donate a kidney for me. In fact, a direct donation likely would not be an optimal match for me. But, if you are healthy and eligible to donate, you could donate a kidney that would go to another person for whom you are a better match while giving me a “voucher” for a living kidney to be donated by someone else whose kidney would be a better match me (like a trade that benefits two or more kidney patients – each patient would receive a more optimally matched kidney). The National Kidney Registry has facilitated more than 5,000 such matching transplants.
Your voucher would be activated upon your donation. I would be prioritized to receive a living kidney in an upcoming transplant chain, typically within twelve weeks after your donation.
And, since each voucher donor starts a unique “kidney transplant chain,” I would receive a well-matched kidney, and your kidney would initiate a linked chain of compatible best-matching kidney transplants enabling two or three additional kidney patients to receive their own kidney transplants. You can read more about voucher donation here: https://www.kidneyregistry.org/for-centers/voucher-program/
For convenience you could donate near your home at one of about 100 kidney transplant centers nationwide affiliated with the National Kidney Registry. To find a transplant center near you, see this list: https://www.kidneytransplantcenters.org/
And, as a voucher donor, you would be entitled to the Donor Shield suite of protections not available elsewhere. Those protections are described here: https://www.donor-shield.org/
I am working with the National Kidney Donation Organization to find a donor (NKDO is a not-for-profit organization assisting kidney donors and recipients, online at NKDO.org). To talk with a living kidney donor, please contact EJ Tamez at firstname.lastname@example.org
If you would consider becoming a donor to save my life and the lives of others, please visit: https://nkr.donorscreen.org/register/now?src=nkdo
You Can Help Me Just by Sharing My Story
Even if you don't want to be or cannot be a kidney donor, you probably know someone who might be interested. You can help me by sharing my story on social media and by email.
Just by sharing my story you will help to save my life. Sharing would be like throwing a life preserver into the water to save me from drowning.
Sharing the link for this webpage is the same thing. The more people who know of my need, the better my chance to reach a person willing to save my life by being a kidney donor.
Reasonable cost reimbursement is legal. Title III of The National Organ Transplant Act, 1984, Pub. L. 998-507, allows for reasonable payments associated with the removal, transportation, implantation, processing, preservation, quality control, and storage of human organs as well as the expenses of travel, housing, and lost wages incurred by the donor of a human organ in connection with the donation of that organ. While reimbursement of expenses is legal, payment for the acquisition of an organ is not. In addition, the kidney recipient’s medical insurance usually covers the donor’s and the recipient’s costs of medical care and hospitalization.
Donors donating through the National Kidney Registry as Non-Directed Donors receive Donor Shield Protections. To learn about Donor Shield Protections please watch: https://youtu.be/MIXMp4PymMI and read https://www.donor-shield.org/ .
The National Kidney Registry (NKR) offers Donor Shield protections to all donors who participate in an NKR swap or donate at a Donor Shield Center. Those protections include:
Lost Wage Reimbursement
Travel and Lodging Reimbursement
Donation Life Insurance
Donation Disability Insurance
Coverage for Uncovered Complications
Reimbursement for Travel, Lodging and Lost Wages for Uncovered Complications
Living Donor Kidney Prioritization if they ever need a kidney themselves.
Read about Financial and Insurance Issues at https://www.kidney.org/transplantation/livingdonors/financial-insurance-issues.